Permission to share your medical records - Enhanced Data Sharing Model

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NHS patients in Leicester, Leicestershire and Rutland may be asked for permission to share their medical records when they are referred from one NHS service to another.

Today, electronic records are kept in all the places where you receive healthcare. These places can usually only share information from your records by letter, email, fax or phone. At times this can slow down your treatment and mean information about you is hard to access.

The services you access, however, may use a unique computer system called SystmOne (depending on which GP practice you are registered with) that allows the sharing of your medical history and records across different healthcare services. We are telling you about this so you can decide whether you want us to share your full medical record with other NHS services that use SystmOne.

The aim is to enable faster, more connected treatment but it cannot happen without patient consent. Enhanced Data Sharing Model (EDSM) is a new model in which the patient is asked whether they would like to Share In and/or Share Out their patient record at each SystmOne care service that provides them with treatment.

What is SystmOne?

SystmOne is a clinical computer system. It lets NHS staff record patient information securely onto a computer. This information can then be shared with other GPs and health professionals so that everyone caring for the patient is fully informed about their medical history, including medication and allergies. SystmOne is currently used in GP practices, child health services, community services, prisons, hospitals, urgent care, the out of hours service and palliative care services.

How does this work?

Imagine you are receiving care from three different NHS services; a GP, a nurse and a smoking advisor. You want your GP and nurse to share information with each other and you want both of them to know your progress with the smoking advisor. However, you do not want the smoking advisor to see any of your other medical information, so your settings would be:

• The GP can share information in and out
• The nurse can share information in and out
• The smoking advisor can only share information out but not access information about you from your electronic records.

Share In controls whether information that has been made shareable at other NHS care services can be viewed by this care service or not.

Share Out controls whether your information entered at this service can be shared with other NHS services.

When patients next access an NHS service they will be asked whether they consent to the information that is recorded about them is shared with other NHS services via SystmOne; and whether they consent to allow other NHS services to view information about them; providing a two-way communication process.

Even if patients want most of their data to be shared, they will be able to have certain parts of their record marked private by talking to their GP. Equally, patients will have the right to give consent to some providers but not others.

Most patients are already familiar with the sharing of Summary Care Records of essential information such as allergies and medications.